The 15th International Conference on

Neuronal Ceroid Lipofuscinosis (Batten Disease)


October 5-8, 2016

Scientific Organizing Committee

Susan L. Cotman, Ph.D. (Chair) Massachusetts General Hospital, Boston, MA, USA

Katherine B. Sims, M.D. (Co-Chair) Massachusetts General Hospital, Boston, MA, USA

Beverly L. Davidson, Ph.D. The Children’s Hospital of Philadelphia, Philadelphia, PA, USA

Sandra Hofmann, M.D., Ph.D. University of Texas Southwestern Medical Center, Dallas, TX, USA

Tammy Kielian, Ph.D. University of Nebraska Medical Center, Omaha, NE, USA

Sara Mole, Ph.D. University College London, UK, USA

David A. Pearce, Ph.D. Sanford School of Medicine of the University of South Dakota, Sioux Falls, SD, USA

Marco Sardiello, Ph.D. Baylor College of Medicine, Houston, TX, USA

David E. Sleat, Ph.D. Rutgers University, Robert Wood Johnson Medical School, Piscataway, NJ, USA


Final program just released, click cover to open:

Please check out the ‘Agenda’ section for Poster Preparation Guidelines, which have just been posted.


Wyndham Boston Beacon Hill

5 Blossom Street
Boston, MA 02114

  • A special discounted group rate of $269.00 USD per night plus tax (currently at 14.45%) has been secured for all attendees.
  • Complimentary wireless internet is included in your group rate.
  • All reservations must be made by Wednesday, September 14th in order to secure the discounted rate.

To make your hotel reservation:

Call 1 (617)239-2394 to make a reservation.  Please be sure to reference "NCL 2016 Conference" to receive the discounted rate.


Book online

(Reservations page is not supported for use on mobile devices.)


Airport Information:
Wyndham Boston Beacon Hill hotel is located approximately 4 miles from Boston Logan International Airport (BOS).

Boston Logan International Airport
1 Harborside Dr.
Boston, MA 02128
Airport Code: BOS

For a list of airlines that fly in and out of BOS please click here.

Ground Transportation:

From the Airport

It takes approximately 10 minutes to drive to Wyndham Boston Beacon Hill Hotel without traffic.  The fee is approximately $25.00 to $30.00.

Taxis can be found outside of each terminal.  Follow signs for Ground Transportation.

Public Transportation:
If you prefer to take public transportation from the airport to the hotel please click here.  Each ride is $2.35 USD.  Approximate commute time is 35 – 40 minutes.

Rental Cars:
Boston Logan Airport has all major car rental companies at their airport.  For a list of these companies and more information on car rentals out of BOS click here.

Hotel Parking fees:
Valet parking is $43.00 USD/day; Self-parking is $48.00 USD/day


If you are in need of childcare services during your participation at the NCL 2016 conference, please contact us at and we will provide you with details regarding childcare options


Click HERE for a detailed conference program.


We are pleased to announce these confirmed speakers at the NCL 2016 conference! Additional updates to this list coming soon!

Keynote speaker:

James Gusella, Ph.D.,  Massachusetts General Hospital, Harvard Medical School, USA

Invited speakers:

Erika Augustine, M.D., University of Rochester Medical Center, USA

Alessandra Biffi, M.D., Dana Farber Cancer Institute, Harvard Medical School, USA

Jonathan Cooper, Ph.D., Kings College London, UK

Ronald Crystal, M.D. Weill Cornell Medical College, USA

Beverly Davidson, Ph.D. The Children’s Hospital of Philadelphia, USA

Stephen Haggarty, Ph.D., Massachusetts General Hospital, Broad Institute of MIT and Harvard, USA

Michelle Hastings, Ph.D., Rosalind Franklin University of Medicine and Science, USA

Ken Hensley, Ph.D., University of Toledo, USA

Tammy Kielian, Ph.D., University of Nebraska Medical Center, USA

Stephane Lefrancois, Ph.D., INRS-Insitut Armand-Frappier, Universite du Quebec, Canada

Emyr Lloyd-Evans, Ph.D., Cardiff University, UK

Jonathan Mink, M.D., Ph.D., University of Rochester Medical Center, USA

Mark Sands, Ph.D., Washington University in St. Louis, USA

Angela Schulz, M.D., University Medical Center of Hamburg-Eppendorf, Germany

David Sleat, Ph.D. Rutgers University, Robert Wood Johnson Medical School, USA

Jill Weimer, Ph.D., Sanford Research, USA

Social program

Welcome Reception
When: Wednesday, October 5, 2016, immediately following the Opening Session
We look forward to meeting and greeting everyone at this informal gathering with drinks and hors d’oeuvres.
This event is included with your registration fee. Additional tickets may be purchased at the time of registration ($40.00 USD).

Boston Duck Boats Tour and Quincy Market
When: Thursday, October 6, 2016, evening
Please join us on a unique tour of Boston, from the land and water, riding on the famous Boston Duck Boats, WWII style amphibious vehicles! Following the tour of the most famous and historical sites around Boston, we will be dropped off at Quincy Market and the Faneuil Hall Marketplace in the heart of downtown Boston.
Cost of tickets for this event is $60.00 USD per person. Tickets may be purchased at the time of registration, and this event will include dinner.

Boston Batten Brew Bash!
When: Saturday, October 8, 2016, evening
Join us for the Boston Batten Brew Bash! Celebrating a week of scientific discovery with great food, cold drinks, music and prizes!
This event is included with your registration fee. Additional tickets may be purchased at the time of registration ($40.00 USD).

The official language of NCL 2016 is English.

Poster Preparation Guidelines
Each poster presenter will share a poster board with one other presenter. Posters will be mounted side-by-side on the poster board, and the maximum useable space for each poster will be 3 feet wide (~90 cm) x 4 feet high (~120 cm) (this is a vertical format). Posters should not extend beyond the allotted space.
Please plan for the poster to be displayed for the full conference, with each presenter assigned a time to stand by their poster during one of the three poster sessions outlined in the agenda. Presentation dates/times will be emailed to the presenters ahead of the conference.


Click HERE to register

NCL 2016 On-Site Registration and Conference Check-in Hours:

Wednesday2:00pm – 7:00pm

Thursday7:30am – 5:30pm

Friday8:00am – 5:00pm

Saturday7:30am – 3:00pm

NCL 2016 Registration and Check-in is on the 15th floor of the Wyndham Boston Beacon Hill.

Cancellation Policy
Registration cancellations received in writing to Debra Marshall ( on or before September 20, 2016 will be refunded in full, less a $50.00 administrative fee. There will be no refunds after this date.



Click HERE for Abstract Preparation Instructions


Thank you to all of our Conference supporters!





NCL 2016 is also supported in part by a grant from The National Institutes of Health.

If you would like to support this meeting, please contact us at